[Vp-integration-subgroup] Another case study of model integration

[Jacob Barhak]

Yes William,

The issue here is traceability and accountability.

You see, if the data originator is not providing any information on data
collection methods and usage terms, how do you know the data can be used at
all - even for academic purposes?

You see, I know that at least in the USA, each academic institution is
signed on all sorts or regulations about use of human subject data.

If there is no corresponding person and no address that can be reached, how
would you grade the data quality or even data legality?

It is not only models and software that need licenses and metadata to
describe them - a proper data source should be well annotated to be
credible.

In the software world there is a legal term called indemnification when you
pass software to another entity - how do you indemnify data?

This is why we are raising this in the working group - it is
important people be aware of those aspects - it is not only a legal topic -
it is much more. Yet I hope we can somehow contact the data curators and
clear things.

                Jacob





On Tue, Mar 30, 2021 at 1:47 PM William Waites <wwaites at ieee.org> wrote:

> > 2. Determine that Recovery / incubation models cannot be reused
> currently since the data source that made the data available is not
> responding and did not specify usage terms. I asked assistance from this
> mailing list to contact the entity responsible for the data in this
> message:
> https://lists.simtk.org/pipermail/vp-integration-subgroup/2021-March/000043.html
>
> > If you can help, please respond.
>
> It doesn’t look like Upcode Academy is actually the source of the data —
> it’s some guy running a website and an on-line software development
> business, who also wants to sell you a dashboard for "your country". I
> think he must be getting the data from elsewhere.
>
> What is special about this particular data source? Can you describe it
> specifically?
>
> (Generic point: for each data source, describe it properly, annotate it
> with metadata… Do we need a data catalogue? This will come up repeatedly.)
>
> Note that for academic work, though fair use rules vary throughout the
> world and we might not have to worry so much about copyright, we do
> typically have to worry about ethics, privacy, consent, etc. This is data
> about people after all. Depending on what’s in it, that may need to be
> considered.
>
> Cheers,
> -w
>
>
>
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